Speech (House debate)

{
    "time": "2013-01-28 15:15:00",
    "attribution": {
        "en": "Hon. Carolyn Bennett",
        "fr": ""
    },
    "content": {
        "en": "<p data-HoCid=\"3163231\">With regard to Canadians diagnosed with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): (<em>a</em>) what funding has been allocated to research this illness in the last two years; (<em>b</em>) how does the government propose to encourage Canadian research into ME/CFS so that the level of research into this complex, multi-system illness is commensurate with its extent and impact; (<em>c</em>) what is the government doing to develop strategies and programs to meet the needs of Canadians with ME/CFS; (<em>d</em>) how is the government ensuring that health professionals are aware of the following documents, (i) the Canadian Consensus Document for ME/CFS (ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners), (ii) Canadian Consensus Document for Fibromyalgia (Fibromyalgia Syndrome: A Clinical Case Definition and Guidelines for Medical Practitioners); (<em>e</em>) when will the government perform the following tasks in relation to the Consensus Document for ME/CFS posted on the Public Health Agency of Canada's website, (i) improve the location of the document on the website in order to facilitate location of this document, (ii) post the French version of this document; (<em>f</em>) why is the Fibromyalgia Consensus Document not posted as a Guideline on the Public Health Agency of Canada's website; (<em>g</em>) what steps is the government taking to ensure that health professionals, patients, and the public have access to science-based, authoritative and timely information on ME/CFS; (<em>h</em>) how soon will the government post other information related to ME/CFS on government websites; (<em>i</em>) what is the government doing to ensure access to ME/CFS knowledgeable physicians and appropriate health care on a timely basis and how are they working with the provinces, territories, professional organizations, educational institutions and other stakeholders to meet these needs; (<em>j</em>) how is the government working with stakeholders to deal with other needs of Canadians with ME/CFS shown by the 2005 Canadian Community Health Survey (CCHS) including, (i) reducing the levels of unmet home care needs, (ii) reducing the levels of food insecurity, (iii) increasing the sense of community belonging experienced by Canadians with this condition; (<em>k</em>) how will the surveillance report on ME/CFS, prepared from analysis of data collected from the 2005 CCHS, be used to improve the situation for Canadians with ME/CFS; and (<em>l</em>) how will the government monitor the extent and impact of ME/CFS and these other conditions on an annual basis given that questions regarding ME/CFS, Fibromyalgia and Multiple Chemical Sensitivities were dropped from the CCHS after 2005? </p>",
        "fr": "<p data-HoCid=\"3163231\"> En ce qui concerne les Canadiens atteints d\u2019enc\u00e9phalomy\u00e9lite myalgique/syndrome de fatigue chronique (EM/SFC): <em>a</em>) combien a-t-on allou\u00e9 \u00e0 la recherche sur cette maladie au cours des deux derni\u00e8res ann\u00e9es; <em>b</em>) comment le gouvernement entend-il encourager la recherche afin que le financement accord\u00e9 pour traiter cette maladie complexe et multisyst\u00e8me soit proportionnel \u00e0 sa pr\u00e9valence et \u00e0 son impact; <em>c</em>) que fait le gouvernement pour \u00e9laborer des strat\u00e9gies et des programmes en vue de r\u00e9pondre aux besoins des Canadiens atteints d'EM/SFC; <em>d</em>) que fait le gouvernement pour s'assurer que les professionnels de la sant\u00e9 connaissent l'existence des documents suivants, (i) le document canadien de consensus sur l'EM/SFC (ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners), (ii) le document canadien de consensus sur la fibromyalgie (Fibromyalgia Syndrome: A Clinical Case Definition and Guidelines for Medical Practitioners); <em>e</em>) quand le gouvernement accomplira-t-il les t\u00e2ches suivantes en rapport avec l'affichage sur le site Web de l'Agence de la sant\u00e9 publique du Canada du document de consensus sur l'EM/SFC, (i) am\u00e9liorer l'emplacement du document sur son site Web de fa\u00e7on \u00e0 en faciliter la consultation, (ii) afficher la version fran\u00e7aise du document; <em>f</em>) pourquoi le document de consensus sur la fibromyalgie n'est-il pas affich\u00e9 en tant que ligne directrice sur le site Web de l'Agence de la sant\u00e9 publique du Canada; <em>g</em>) quelles mesures le gouvernement entend-il prendre pour que les professionnels de la sant\u00e9, les patients et le public aient acc\u00e8s \u00e0 des renseignements qui sont scientifiques, font autorit\u00e9 et sont \u00e0 jour sur l\u2019EM/SFC; <em>h</em>) quand le gouvernement affichera-t-il d\u2019autres renseignements sur l\u2019EM/SFC sur les sites Web du gouvernement; <em>i</em>) que fait le gouvernement pour assurer un acc\u00e8s rapide \u00e0 des m\u00e9decins inform\u00e9s et \u00e0 des soins de sant\u00e9 appropri\u00e9s sur l\u2019EM/SFC, et comment collabore-t-il avec les provinces, les territoires, les organismes professionnels, les \u00e9tablissements d\u2019\u00e9ducation et autres intervenants pour r\u00e9pondre \u00e0 ces besoins; <em>j</em>) comment le gouvernement travaille-t-il avec les intervenants pour tenir compte des autres besoins des Canadiens atteints d\u2019EM/SFC, tels que signal\u00e9s dans l\u2019Enqu\u00eate sur la sant\u00e9 dans les collectivit\u00e9s canadiennes (ESCC) de 2005, y compris (i) r\u00e9duire le niveau de besoins insatisfaits en mati\u00e8re de soins \u00e0 domicile, (ii) r\u00e9duire l\u2019ins\u00e9curit\u00e9 alimentaire, (iii) accro\u00eetre le sentiment d\u2019appartenance \u00e0 la collectivit\u00e9 des Canadiens atteints de cette maladie; <em>k</em>) comment le rapport de surveillance sur l\u2019EM/SFC, pr\u00e9par\u00e9 \u00e0 partir d\u2019analyses de donn\u00e9es tir\u00e9es de l\u2019ESCC de 2005, sera-t-il utilis\u00e9 pour am\u00e9liorer la situation des Canadiens atteints de l\u2019EM/SFC;<em> l</em>) comment le gouvernement entend-il surveiller chaque ann\u00e9e la pr\u00e9valence et l\u2019impact de l\u2019EM/SFC et de ces autres maladies, \u00e9tant donn\u00e9 que les questions concernant l\u2019EM/SFC, la fibromyalgie et les polysensibilit\u00e9s chimiques ont \u00e9t\u00e9 supprim\u00e9es de l\u2019ESCC apr\u00e8s 2005? </p>"
    },
    "url": "/debates/2013/1/28/carolyn-bennett-5/",
    "politician_url": "/politicians/carolyn-bennett/",
    "politician_membership_url": "/politicians/memberships/2631/",
    "procedural": false,
    "source_id": "p3163231",
    "h1": {
        "en": "Routine Proceedings",
        "fr": ""
    },
    "h2": {
        "en": "Questions on the Order Paper",
        "fr": ""
    },
    "h3": {
        "en": "Question No. 1044",
        "fr": ""
    },
    "document_url": "/debates/2013/1/28/",
    "related": {
        "document_speeches_url": "/speeches/?document=%2Fdebates%2F2013%2F1%2F28%2F"
    }
}